Death Before Birth: Understanding, informing and supporting choices made by people who have experienced miscarriage, termination and stillbirth is a two-year ESRC-funded project, carried out by researchers from the Universities of Birmingham and Bristol. They looked at the experiences of women who had gone through early pregnancy loss, such as miscarriage, terminations for foetal anomaly or stillbirth before 24 weeks.
Further details of the project can be found at: deathbeforebirthproject.org
Read the report
Macmillan has developed an information booklet in partnership with the charity Mummy’s Star, for women diagnosed with cancer during pregnancy. It’s estimated that 1 in every 1,000 pregnant women is diagnosed with cancer. The booklet also explains the emotional and practical issues women may experience in this situation and talks about the treatment and support that is available.
Free copies of the booklet can be ordered or downloaded from: https://be.macmillan.org.uk/be/s-864-cancer-and-pregnancy.aspx
The Maternity Bereavement Experience Measure (MBEM) questionnaire and supporting resource was created collaboratively by Sands, NHS England and the London Maternity Clinical Network. The questionnaire was designed to seek feedback from bereaved parents where a baby or babies have died during pregnancy or shortly after birth.
Watch the videos here
Age Connects ‘Voyager’ project provides talking therapy for older people who have recently moved into a care home in Denbighshire, Wales. The initiative helps to prevent any potential deterioration in the mental health of older people when transitioning into care. The service is free and confidential.
Read more about Voyager
Read more about Age Connects
Macmillan has developed an information booklet in partnership with the charity Mummy’s Star, for women diagnosed with cancer during pregnancy. It explains some of the emotional and practical issues experienced by women in this situation, as well as the treatment options and support available to them during this difficult and complex time.
The Pelvic Partnership aims to provide support and information about Pelvic Girdle Pain (PGP) to women with PGP and their families and carers. The main aim of the charity is to provide women and healthcare professionals with information about best practice for the treatment and management of pregnancy-related PGP, and to enable and empower women to access the right treatment.
Visit the website
Safer Pregnancy Wales is a yearlong campaign developed by the Wales Maternity Network in collaboration with 1000 Lives Improvement. The campaign highlights the importance of keeping safe during pregnancy to reduce the risk of stillbirth and aims to help expectant mothers and healthcare professionals talk about what can be done to keep safe and reduce the risk of stillbirth.
Visit the website for further information
Medway NHS Foundation Trust has developed a communication tool to escalate the care of unwell newborn babies between healthcare professionals. LABOUR (Location, Age, Birth type, Ongoing concerns, Urgency, and Risk factors) is the name of the tool, designed to provide specific and timely information to clinicians so they can deploy appropriate healthcare resources efficiently.
A Perinatal pathway for babies with palliative care needs has been developed by Together for Short Lives with expert input from ethicists and clinicians working across obstetrics, antenatal and neonatal care, and children’s palliative care.
It is designed to support health professionals to deliver sensitive and timely support, enabling families to spend time with their baby in a more home-like environment, and with as little technologically dependent care as possible.
Register free here to read the pathway
Bliss offers a wide range of emotional and practical support to empower families of babies born premature or sick and equip them with the knowledge and skills they need to provide the best possible care for their baby.
The Parkinson’s UK website offers support and information about symptoms, treatments and living with Parkinsons. It also offers advice on everything from work, driving, diet and exercise to emotional issues and relationships.
For more information
Dementia UK offers advice to families facing dementia on their website along with an invitation to subscribe to their newsletter. Recent topics include: changes in behaviour at dusk, the use of dolls in dementia care, delirium (confusion) and grief, bereavement and loss.
NHS England have issued a Patient Safety Alert signposting to newly published resources to support safer care for full-term babies. This is part of the Atain programme which is working to support the prevention of harm that can lead to newborns being admitted to neonatal units.
The latest MBRRACE-UK newsletter has been published. It covers the Saving Lives, Improving Mothers’ Care annual report, Sharing practice articles and Perinatal mortality surveillance update.
Read the newsletter here
The London Maternity Clinical Network have produced their latest highlight report. It covers headlines and activities about the Clinical Network Working Groups along with an update on the Maternity Transformation Programme.
A guide has been developed by the London Clinical Networks and Healthy London Partnership to help understand the complexity of the perinatal mental health pathway. It highlights key priorities and has been produced with input from health and social care professionals.
The Nursing and Midwifery Council (NMC) have launched a bi-monthly newsletter which is aimed at people who are interested in nursing and midwifery education. They also have an informative online education hub.
Newsletter sign up here | Online hub